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The Woodlands Marathon

Saturday, March 1st, 2025 The Woodlands, TX 77380 US Directions
Charity
CURE SANFILIPPO FOUNDATION

Goal: $10,000

WHAT IS SANFILIPPO SYNDROME?  IMAGINE ALZHEIMER’S, BUT IN CHILDREN.

In a nutshell, that’s what every family of children with Sanfilippo Syndrome faces. Our children are born with a change in their DNA that causes a very important enzyme to be made improperly … or not at all. Because they don’t have enough of this critical enzyme, our children cannot breakdown and recycle natural cellular waste. Their cells become clogged with toxic levels of heparan sulfate. While every cell in the body is affected, brain cells suffer the most. Effects on the brain become apparent between 2-6 years of age – speech problems, developmental delays, challenging behaviors, extreme hyperactivity, and poor sleep. Many children are initially diagnosed with Autism before finding the underlying diagnosis. Children will go on to experience progressive dementia similar to Alzheimer’s, stealing away their skills and knowledge.  Children will often suffer from seizures.  They will lose the ability to eat for themselves and many will get a feeding tube.  They will lose the ability to walk and need a wheelchair.  Children often pass away in their teenage years.  It is relentless and devastating.  Join us in fighting it by raising awareness and funds for research and clinical trials for the treatment of Sanfilippo Syndrome.  All donations are tax deductible.  For more information on the Cure Sanfilippo Foundation, please visit www.CureSFF.org.

Top Donors

$5,476 Raised By 73 Donors

$1,000 on behalf of Quail Tools
$511 from Facebook Donation
$500 on behalf of BURNER FIRE CONTROL, INC.
$200 on behalf of Forrest Burton
$200 on behalf of Grace Carman
$200 on behalf of Jeff Long
$200 on behalf of Jeffrey Enia
$200 on behalf of Steven Simpson
$100 on behalf of Adam Tietze
$100 on behalf of Brandon Francis
$100 on behalf of Buster/Theresa Longo
$100 on behalf of Cristobal Lara
$100 on behalf of James Metcalf
$100 on behalf of Jason Fruge
$100 on behalf of Karen Bolus
$100 on behalf of Linda Anderson
$100 on behalf of Pete Bergeron
$100 on behalf of Randal Rebne
$100 on behalf of Randy Schultz
$100 on behalf of Reba Stevens
$100 on behalf of Robert Tinsley
$100 on behalf of Tyler Lawson
$50 on behalf of Caleb Henry
$50 on behalf of Erik Howard
$50 on behalf of James Western
$50 from Anonymous
$50 on behalf of Judy Stoner
$50 on behalf of Paula Ruble
$50 from Anonymous
$50 on behalf of Rylan Moore
$50 on behalf of Sarah Reintgen
$50 on behalf of Wes Wiggins
$25 on behalf of Abby Fernandez
$25 on behalf of Abby Fernandez
$25 on behalf of Alicia Bernal
$25 on behalf of Annie Behr
$25 on behalf of Danielle Miguel
$25 on behalf of Emily Valora
$25 on behalf of HOLLY PALERMO
$25 on behalf of Jaime Garcia
$25 on behalf of Lisa Unknown
$25 on behalf of Mark Embrey
$25 on behalf of Mercedes Vales
$25 on behalf of Sarah Cherington
$25 on behalf of Sergio Medina
$10 from Anonymous
$10 from Anonymous
$10 from Anonymous
$10 on behalf of Bo Jung
$10 on behalf of Christian Hightower
$10 on behalf of Colin Scherp
$10 on behalf of Damaris Vargas
$10 on behalf of Daniela Ramirez
$10 from Anonymous
$10 on behalf of Esther Hernandez Martinez
$10 from Anonymous
$10 on behalf of Isabella Booth
$10 on behalf of JUAN PORTILLA
$10 from Anonymous
$10 on behalf of Kristal Pipkin
$10 on behalf of Maria Bou
$10 on behalf of Miguel Angel Perez Ibarra
$10 from Anonymous
$10 on behalf of Paola Porrero
$10 on behalf of Sean King
$10 on behalf of Selena Cruz
$10 from Anonymous
$5 on behalf of Edward Wickliff
$5 on behalf of Matthew Trow
$3 on behalf of Esmeralda Insúa Martínez
$3 on behalf of Ivonne Marie Insúa Martínez
$3 on behalf of Victor Insua Gener
$1 from Anonymous

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